Research Questions that Matter to Us: priorities of young people with chronic illnesses and their caregivers.

IMAPCT Patients and caregivers affected by different chronic illnesses were able to achieve consensus on condition-agnostic research priorities. Age and role influenced research priorities.Questions posed by young people experiencing different chronic conditions fell under three themes (physical, social-emotional and health care system) and two cross-cutting dimensions (living with a chronic illness and future with a chronic illness).Use of the Research Priorities of Affected Communities (RPAC) method, which begins with the patient's lived experiences, provided nuanced insights into the complexity of living with a chronic illness and surfaced under-studied research topics to guide future research investment.