The effectiveness of the information system for managing data from a registration study of acute myeloid leukemia in children

The article presents the results of the development and implementation of tools for an integrated approach to the formation of a single information space in the field of organizing the registration study "Primary diagnosis of acute myeloblastic leukemia in children", organized in the National Research Center of Pediatric Hematology, Oncology and Immunology named after Dmitry Rogachev Ministry of Health of the Russian Federation. On the example of this study the advantages of using the methods of optimization of information flows of data obtained in the medical technological process in the development of specialized information systems are shown. The conceptual model of the study data "Primary diagnosis of acute myeloid leukemia in children" and the model of interpretation of the data structures obtained as a result of high-tech medical care in the structure of the study data model are presented. On the basis of the proposed conceptual data model and its details, an information system for data flow management of the study "Primary diagnosis of acute myeloid leukemia in children" was developed and the prospect of its development in accordance with the need to transform the tasks of the registration study into the task of creating a unified therapeutic approach within the framework of the introduction of a single Protocol of therapy in hospitals.