The childhood arthritis & rheumatology research alliance network registry: demographics and characteristics of the initial 6-month cohort

Purpose In 2009, the Childhood Arthritisand RheumatologyResearch Alliance (CARRA) established a longitudinal multi-center, multiple disease U.S. national registry (CARRAnet) for pediatric rheumatologywith the intent of providing 60 participating clinical sites a new framework to drive observational clinical research and evidence-based care. CARRAnet seeks to enroll up to 20,000 subjects with childhood-onset rheumatic disease and twice yearly follow-up. We report baseline characteristics of the initial 6-month enrollment cohort; disease-specific results are reported separately.